Intellectual Disability in Early Childhood: The Perspective of the Brothers and Sisters of Children with Down's Syndrome

Authors

  • Paola Andreucci Annunziata Universidad Gabriela Mistral
  • Camila Morales Cabello Universidad Gabriela Mistral

Keywords:

Intellectual disability; Early childhood; Brothers; Sisters; Family

Abstract

The study falls within the scope of Early Care and Intervention. It was proposed to contribute to the approach of intellectual disability (ID), from a systemic-family perspective, stressing the contribution of socio-family agents in the construction of the phenomenon. In order to do so, he gave voice to the brothers and sisters of children with Down’s syndrome, investigating their socio-cognitive representations (conceptions, attitudes and feelings) about themselves, his brothers and sisters in ID situation and his role in the family. The qualitative methodological design used indepth interviews oriented by thematic script as tools for collecting/producing
information, based on family-centered approaches. The study group consisted of 18 Chilean brothers and sisters and 2 immigrants attending three stimulation and early care centers in Santiago of Chile. The results point to defined conceptions about ID,
attitudes ranging from a temporary distance to a greater degree of understanding of the phenomenon, initial feelings of frustration, grief, rage and personal and family invisibilization and professional projections associated with ID.

Author Biographies

Paola Andreucci Annunziata, Universidad Gabriela Mistral

Psicóloga y Licenciada en Psicología por la Universidad de Chile. Magíster en Ciencias
de la Educación por la Pontificia Universidad Católica de Chile (PUC). Doctora en
Ciencias de la Educación por la PUC. Académica e Investigadora de la PUC. Directora
Centro de Investigación en Educación Universidad Gabriela Mistral (CIE-UGM).
Directora Centro de Estimulación Temprana Universidad Gabriela Mistral (CET-UGM).
Con estudios de doctorado en Investigación en Psicoterapia (PUC, Universidad de Chile,
Universidad de Heidelberg). Se interesa por la educación inclusiva, la problemática de la equidad desde la atención temprana hasta la educación superior y el aprendizaje socioemocional
desde perspectivas narrativas, dialogales y dialógicas

Camila Morales Cabello, Universidad Gabriela Mistral

Socióloga y Licenciada en Sociología por la Universidad Academia de Humanismo
Cristiano. Master en Educación por la Universidad Nacional de La Plata. Asistente de
Investigación del Centro de Investigación en Educación (CIE-UGM)

Downloads

Published

2019-11-01

How to Cite

Andreucci Annunziata, P., & Morales Cabello, C. (2019). Intellectual Disability in Early Childhood: The Perspective of the Brothers and Sisters of Children with Down’s Syndrome. Revista Latinoamericana De Educación Inclusiva, 13(2), 191–208. Retrieved from https://revistainclusiva.ucentral.cl/revistainclusiva/article/view/682

Issue

Vol. 13 No. 2 (2019): 25 Years On: Salamanca's Impact on Inclusive Education

Section

Temática Libre

License

Creative Commons License

This work is licensed under a Creative Commons Attribution 4.0 International License.

Creative Commons Attribution (by)

This licence permits the exploitation of the work, as well as the creation of derivative works, the distribution of which is also permitted on condition that express reference is made to the author, i.e. that his/her name appears in any use or act of exploitation of the work.